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No new autism registry, HHS says, walking back NIH director’s claim
Published: 1 day ago | (Link to STAT)
The federal health department is not creating a new registry of Americans with autism, an HHS official said in a written statement Thursday.
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RFK Jr.’s autism study to amass medical records of many Americans
Published: 2 days ago | (Link to CBS News)
The autism study is planning to link confidential data “with broad coverage in the U.S. population” in one place for the first time.
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ASAN Gravely Concerned by Administration’s Plans for Autistic People’s Medical Data
Published: 2 days ago | (Link to Autistic Self Advocacy Network)
4/24/25: ClarificationAs of late this afternoon, HHS has released new information about the proposed autism database that we discussed in the statement…
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Fact-checking Robert F. Kennedy Jr.’s statements on autism
Published: 2 days ago | (Link to PBS)
Medical experts, along with people on the autism spectrum, told PolitiFact that Kennedy’s portrayal was skewed.
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RFK Jr’s autism study collecting Americans’ private medical records
Published: 2 days ago | (Link to The Guardian)
The National Institutes of Health claims it is fulfilling RFK’s promise to find cause of autism by September.
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Autism-related traits in myotonic dystrophy type 1 model mice are due to MBNL sequestration and RNA mis-splicing of autism-risk genes
Published: 4 days ago | (Link to Nature)
Genome-wide enrichment of gene-specific tandem repeat expansions has been linked to autism spectrum disorder. One such mutation is the CTG tandem repeat…
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Autism rates rose again. Experts explain why
Published: 4 days ago | (Link to Science News)
Autism rates are higher than ever before, probably because of more expansive and sensitive diagnoses. Those numbers highlight the need for more support for…
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‘Love on the Spectrum’ star ‘disgusted’ with RFK Jr. over autism comments
Published: 4 days ago | (Link to NewsNation)
“Autistic people have the same hopes, dreams and yes, the same awkward dating moments as anyone else,” Dani Bowman told NewsNation.
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Many in the autism community say RFK Jr. is pushing harmful and regressive rhetoric about who they are
Published: 5 days ago | (Link to CNN)
Alison Singer has a few people she’d like Robert F. Kennedy Jr. to meet. Singer’s brother and daughter are two of the millions living with autism in the…
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RFK Jr. said autistic people don’t work or play sports. They say he’s wrong.
Published: 6 days ago | (Link to The Washington Post)
Autistic people and their loved ones have swiftly and publicly rejected statements by Robert F. Kennedy Jr., the nation’s top health official, that people with…